SOOO Thankful it is Friday! This week has really kicked my butt.
After a lot of consideration I am really extremely sad to report that we are going to have to skip the Alzheimer's walk this year. Everyone here is busy with stuff going on and mom doesn't feel like she could actually walk in it and I do not feel confident leaving her sitting on the side by herself. I really thought it would be a great opportunity for her to feel surrounded and supported but it looks like this year it won't be happening.
With everything that has been going on I have not fundraised for the Walk at all. I posted here and on Facebook but never really made it a need. We did get one donation from an AMAZING family member. Someone who I feel like in the midst of complete chaos knows what it feels like to have their world crumple around them. She has walked with such amazing Grace through hardships and challenges. She too has been deeply impacted by Alzheimer's disease in her own immediate family. When I feel discouraged I look at her and find the strength to carry on. Nancy Thank you so very very much for your donation! You are such a light in my life.Thank you for all your support and love!!
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I talked to Christie last night about my Dad. He had a surgery this morning to remove the port in his shoulder area. He is very succeptible to infection right now. He is still not quite up and moving around yet. He is able to eat real food but doesn't have the appetite for it.
They doctor's have confirmed that the tumor moved around in his abdomen and that is what caused the holes. They said he was very very very sick for a couple weeks before it actually burst, while the holes were probably ripping and then was in excruciating pain when it actually burst open.
The nurses and directors at Marie Crowley have told Christie and Dad that they have several Clinical Trials for him to be a part of once he is up and moving around and ready to go through that again. They also said the tumor used to be the size of a Grapefruit and is now the size of an orange... but are not sure what caused that change. I am ecstatic about that news!
Next week sometime, with no more complications over the weekend, they are hoping he will be able to be moved to an Acute Care Facility in Grapevine, which is closer to home. They will help change the dressings on his Wound Vac, that is what is closing up his incision, and help him with the physical therapy he is needing to move around.
He is still slipping in and out of clear communication. The nurses say this is normal, that he is dead tired, fighting infection, has not eaten and it is a symptom of that. I know he is ready to go home and getting sadder and more depressed with each day he remains there. I wish so badly I were closer to cheer him up. Instead I am sending up continual prayers for his recovery!
I feel like I could sleep ALL DAY tomorrow! Happy Weekend!
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